Help
for Caregivers
Reach out to avoid isolation
The
Circle E-mail list for prostate cancer survivors,
caregivers, family members and friends. Moderated by Gary Huckabay and Nancy
Peress.
OncoChat is
an IRC peer support group. "We don't offer professional counseling;
just lots of hugs, advice and support from people who share similar experiences
and emotions." Family, friends, and caregivers welcome.
National Family
Caregivers Association
1-800-896-3650
NFCA is a grass roots organization created to educate,
support, empower and speak up for the millions of Americans who care for
chronically ill, aged or disabled loved ones. It is the only national, charitable organization dedicated to making life better
for all of America's family caregivers.
Well Spouse
Foundation "All well spouses face the same problems
of anger, guilt, fear, isolation, grief, and financial threat whether
their partners are full-time caregivers or whether their partners have
only moderately disabling illnesses."
Ten Ways to Care for the Caregiver
reprinted at U of Penn Oncololink from the 1993 winter newsletter of
Emotional Issues for Caregivers and Patients at cancercare.org
How To Care: learn to overcome fear
Caregiving
A chapter from the American College of Physicians Online
Handbook
Home
Care Guide for Advanced Cancer "For family, friends,
and hospice workers caring for persons with advanced cancer at home,
when quality of life is the primary goal."
The
Prepared Family Caregiver This full complete course "teaches
an orderly problem-solving approach to managing care at home while working
cooperatively with health professionals." This course was developed
at the Pennsylvania State University College of Medicine Department of
Behavioral Science and Bloomsburg University Department of Nursing. You
may print and download it for not-for-profit use.
Home
Care Plan for Succeeding at Caregiving
Tiredness
and Fatigue
Cooking
for the Very Ill Chef James Haller, a hospice volunteer,
wrote a cookbook called What
to Eat When you Don't Feel Like Eating. Preface by two Canadian
oncologists.
Social Services
Medicare Telephone Hotline 1-800-638-6833
Social Security Administration 1- 800-772-1213
The
Eldercare Locator Service 1-800-677-1116 helps you get information
about state and local services for helping older people stay independent
in their own homes. Can help caregivers find respite. You talk to "a
friendly, trained person" who'll point you at services for seniors
such as meals, home care, transportation, home repair, recreation, social
activities, legal and other community services. A public service of the
U.S. Department of Health and Human Services.