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Bob Anderson founded the Prostate Cancer Coalition of North Carolina

 

cover
Final Gifts
by Maggie Callanan & Patricia Kelley


Cancer Helplines
Supportive Care, Pain Control
Hospice

Choices - free booklet

CHOICES:
Living with cancer,
dying with dignity

By Molly Sower Sugarman
Free booklet. download as .pdf

Help for Caregivers

Reach out to avoid isolation

The Circle E-mail list for prostate cancer survivors, caregivers, family members and friends. Moderated by Gary Huckabay and Nancy Peress.

OncoChat is an IRC peer support group. "We don't offer professional counseling; just lots of hugs, advice and support from people who share similar experiences and emotions." Family, friends, and caregivers welcome.

National Family Caregivers Association phone number1-800-896-3650 NFCA is a grass roots organization created to educate, support, empower and speak up for the millions of Americans who care for chronically ill, aged or disabled loved ones. It is the only national, charitable organization dedicated to making life better for all of America's family caregivers.

Well Spouse Foundation "All well spouses face the same problems of anger, guilt, fear, isolation, grief, and financial threat whether their partners are full-time caregivers or whether their partners have only moderately disabling illnesses."

Ten Ways to Care for the Caregiver reprinted at U of Penn Oncololink from the 1993 winter newsletter of

Emotional Issues for Caregivers and Patients at cancercare.org

How To Care: learn to overcome fear

Caregiving A chapter from the American College of Physicians Online Handbook

Home Care Guide for Advanced Cancer "For family, friends, and hospice workers caring for persons with advanced cancer at home, when quality of life is the primary goal."

The Prepared Family Caregiver This full complete course "teaches an orderly problem-solving approach to managing care at home while working cooperatively with health professionals." This course was developed at the Pennsylvania State University College of Medicine Department of Behavioral Science and Bloomsburg University Department of Nursing. You may print and download it for not-for-profit use.

Home Care Plan for Succeeding at Caregiving

Tiredness and Fatigue

Cooking for the Very Ill Chef James Haller, a hospice volunteer, wrote a cookbook called What to Eat When you Don't Feel Like Eating. Preface by two Canadian oncologists.

Social Services

Medicare Telephone Hotline 1-800-638-6833

Social Security Administration 1- 800-772-1213

The Eldercare Locator Service 1-800-677-1116 helps you get information about state and local services for helping older people stay independent in their own homes. Can help caregivers find respite. You talk to "a friendly, trained person" who'll point you at services for seniors such as meals, home care, transportation, home repair, recreation, social activities, legal and other community services. A public service of the U.S. Department of Health and Human Services.



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