Hospice, End of Life Care
Patients need better idea of when they
will die, doctors say Doctors who refer terminally ill
patients to hospice care are
say University of
Chicago researchers Elizabeth
Lamont and Nicholas Christakis. Doctors expect patients entering hospice to live 5 times longer than they
actually do. Death seems sudden and people miss chances to say goodbye.
A Dying Person's Guide To Dying by Roger C. Bone, M.D.
What Does Someone Dying Need? by Rex Winsbury
Helping Yourself Live When You Are Dying Dr. Alan D. Wolfelt
Aging with Dignity agingwithdignity.org
Their "Five Wishes document helps you express how you want to be treated if you are seriously ill and unable to speak for yourself. It is unique among all other living will and health agent forms because it looks to all of a person's needs: medical, personal, emotional and spiritual . Five Wishes also encourages discussing your wishes with your family and physician."
Compassion and Choices
public membership organization
Has a phone counselling service - 800-247-7421
and and End of Life Consultatation Program
"Compassion & Choices, a nonprofit organization, improves care and expands choice at the end of life. We support, educate and advocate. "provides national leadership for client service, legal advocacy and public education to improve pain and symptom management, increase patient empowerment and self-determination and expand end-of-life choices to include aid-in-dying for terminally ill, mentally competent adults."
"We work toward improved care and expanded options at life's end, with goals of comprehensive, effective comfort care for every dying person, and legal and humane aid-in-dying if suffering is unbearable and cannot be relieved."
Facing a Terminal Illness compassionandchoices.org
Living Wills and Advanced Directives compassionandchoices.org
"What is an ethical will? Ethical wills are a way to share your values, blessings, life's lessons, hopes and dreams for the future, love, and forgiveness with your family, friends, and community." ethicalwill.com
HOSPICE ORGANIZATIONS & Resources
DyingWell.org Dr. Ira Byock , long time palliative care physician and advocate for improved end-of-life care, and a past president of the American Academy of Hospice and Palliative Medicine, provides written resources, as well as organizations, web sites and books to empower persons with life threatening illness and their families to live fully.
Foundation of America "On this page you can learn about hospice
care, how to select a hospice and how to locate a hospice near you."
National Hospice Organization (USA)
House International gateway to resources for life-threatening
illness and end of life issues.
Caring Connections -- (caringinfo.org) -- a project of National Hospice and Palliative Care Organization
Alliance for Care at the End of Life
The Palliative Care Policy Center (PCPC)
offers expert support to hospitals, nursing homes, health systems, hospices, and other organizations that serve individuals nearing the end of life.